Sadly I have run out of storage on WordPress for all of Dembe’s video’s and photographs. I simply can’t afford to pay the amount WordPress demands for a blog that has as many photos etc so with great sadness I have had to move the blog over to Blogger https://thedembediaries.blogspot.com/
I'm a 40 something year old woman who has been sick since 2007. It took four years to be diagnosed. I have been diagnosed with postural orthostatic tachycardia syndrome, Ehlers Danlos Syndrome and now severe autonomic dysfunction. I was diagnosed with a spontaneous CSF leak in 2016 which has self healed to an extent, however I still have problems most days by the evening. I have also been diagnosed with Menieres disease and have lost over 10% of my hearing in my right ear. Just to name a few issues.
Originally in 2007 I was diagnosed with having Myasthenia Gravis hence the name of my blog etc however that diagnosis was removed in 2009. There are still some doctors that I see that believe I have MG and some that don't. No one can explain the Ptosis I suffer from daily or my breathing issues.
I am married and have a yellow Labrador, who features in my blog! I also collect Emma Bridgewater Pottery.
You can find me on Facebook https://www.facebook.com/themyastheniakid and Dembe's blog at www.thedemebediaries.com
View all posts by RachelMorrisMcGeethemyastheniakid