From the 23rd August 2021 we have moved blogging platform. I will slowly be transferring the old blog posts onto Blogger as that is free.
Sadly I have run out of storage space on WordPress so can’t continue Dembe’s blog on this platform as I simply can’t afford the £300 plus a year I would need to have all his photos. You can now find us on
I'm a 40 something year old woman who has been sick since 2007. It took four years to be diagnosed. I have been diagnosed with postural orthostatic tachycardia syndrome, Ehlers Danlos Syndrome and now severe autonomic dysfunction. I was diagnosed with a spontaneous CSF leak in 2016 which has self healed to an extent, however I still have problems most days by the evening. I have also been diagnosed with Menieres disease and have lost over 10% of my hearing in my right ear. Just to name a few issues.
Originally in 2007 I was diagnosed with having Myasthenia Gravis hence the name of my blog etc however that diagnosis was removed in 2009. There are still some doctors that I see that believe I have MG and some that don't. No one can explain the Ptosis I suffer from daily or my breathing issues.
I am married and have a yellow Labrador, who features in my blog! I also collect Emma Bridgewater Pottery.
You can find me on Facebook https://www.facebook.com/themyastheniakid and Dembe's blog at www.thedemebediaries.com
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