This week we suffered a family bereavement that has rocked our world. I don’t have the energy or concentration levels to write my usual diary entries for Dembe’s week. I have taken photos as has Sophie from Creature kind.
Published by RachelMorrisMcGeethemyastheniakid
I'm a 40 something year old woman who has been sick since 2007. It took four years to be diagnosed. I have been diagnosed with postural orthostatic tachycardia syndrome, Ehlers Danlos Syndrome and now severe autonomic dysfunction. I was diagnosed with a spontaneous CSF leak in 2016 which has self healed to an extent, however I still have problems most days by the evening. I have also been diagnosed with Menieres disease and have lost over 10% of my hearing in my right ear. Just to name a few issues. Originally in 2007 I was diagnosed with having Myasthenia Gravis hence the name of my blog etc however that diagnosis was removed in 2009. There are still some doctors that I see that believe I have MG and some that don't. No one can explain the Ptosis I suffer from daily or my breathing issues. I am married and have a yellow Labrador, who features in my blog! I also collect Emma Bridgewater Pottery. You can find me on Facebook https://www.facebook.com/themyastheniakid and Dembe's blog at www.thedemebediaries.com View all posts by RachelMorrisMcGeethemyastheniakid